Today is D-day for me, the day that I finally might get some answers as to my son's health. For those of you who don't know, my son, 5 years old, has been diagnosed with epilepsy.
He had his first seizure just a little over two years ago, however had always suffered through terrible night terrors which were shown through an EEG to actually be seizures. His epilepsy is continually changing in that the first seizure was a generalized seizure where he went unresponsive for 6 hours. He had the night-time seizures. Then he started to have occipital lobe seizures where he sees things distorted. To add to the mix, this year he has been having quite a few absence seizures. He is on 3 different anti-seizure medications at the moment.
After waiting a good 7 months, we're on our way to the Epilepsy Monitoring Unit (EMU) at The Hospital for Sick Children where he will be having a Video EEG done over the course of the next three days. I'm dreading what the stress and lack of sleep is going to do for my pain levels, however we all push on to do whatever it is we must get through. I'm terrified of getting these results, but on the other hand, it's better to know exactly what we are looking at rather than digging our heads into the sand...